Treatment Continued (?)

Februrary is 'Rare Disease' month. Please read more about the importance of raising awareness, improving care and support in rare diseases (including further references) in my post from last year. Examples for rare conditions are severe motility disorder such as chronic intestinal pseudo-obstruction (CIPO). More information can be found here including the information pack. Some…

From Uncertainty To (In) Therapy

Uncertainty - Quantum, Philosophy and Illness A while ago I watched ‘A discussion with Dr Barry Kerzin* & Prof Carlo Rovelli about Nagarjuna’s philosophy and quantum physics’ as part of the QISS. I would like to share some thoughts from this discussion mainly about Nagarjuna’s philosophy (I recommend Garfield’s translation) and its application to the…

Christmas Spirit

Dear all,  From the bottom of our hearts we wish you all a wonderful Advent season full of hope, joy and love.  May your souls be infused with faith, your bodies be charged with warmth and your minds grow in gratitude.  Enjoy this calm time of togetherness, gifts from heart to heart and awareness of…

In the Rain (Reign) of Pain

First of all, I updated the publication list below the last post regarding rare illnesses and CIPO. Another inpatient stay for pain management, so why not talk about pain? It goes on...even when it doesn't seem so. Life always finds a way and blooms where one wouldn't have expected it. The Pain's Reign (?) What…

Not Too Rare To Care

Yesterday was rare disease day 2023 * and I want to spread some awareness on one of my illnesses that is categorised as rare (which is: it affects less than 1 per 2000, CIPO is 9 in 1.000.000): Chronic intestinal pseudo-obstruction (CIPO) Like many other rare illnesses, CIPO is complex and its progressed form lacks…