Not Too Rare To Care

Yesterday was rare disease day 2023 * and I want to spread some awareness on one of my illnesses that is categorised as rare (which is: it affects less than 1 per 2000, CIPO is 9 in 1.000.000): Chronic intestinal pseudo-obstruction (CIPO) Like many other rare illnesses, CIPO is complex and its progressed form lacks…

(Don’t) Trust Your Gut

This post is mainly about neurogastro stuff and some recommendations in the end, if you want to read about absurdism, stones, optimism, Urvertrauen and donuts stay tuned for the next post. I added more on dysmotility and parenteral nutrition. Can You Trust Your Gut? The situation hasn’t changed much other than the subileus symptoms have…