chronic illness, my journey, vascular compression syndromes

(Happy) New Year

Dear all,  I wish you all a happy new year! Hopefully, you can look back to some wonderful memories of 2019 and will collect many more in the next year. Thank you for your support. I still can’t believe how lucky I am to have so marvellous people around me!   We also hope that you… Continue reading (Happy) New Year

mindfulness, my journey, recovery

Whistle the Melody of Happiness

Skip the following for more interesting stuff... — Well, that was quite a scare. Two weeks ago, things started to improve when I suddenly felt excruciating pain in my back and abdomen. We were on he way to visit some friends in Switzerland before the follow-up appointment in Freiburg. A young woman and her mum… Continue reading Whistle the Melody of Happiness

Bo, mindfulness, my journey, recovery

Practice is Progress and the Fear Aside

First of all I would like to share one interview, a very informative discussion on Loin Pain Hematuria Syndrome with a woman who has suffered from LPHS and helps now collecting data, supporting other patients and raising awareness as well as Prof Sollinger who has put a lot of effort towards its research and treatment. Huge… Continue reading Practice is Progress and the Fear Aside

Bo, my journey, surgery

Homey Happiness and Happy Home

This is the first time in the past three years that things developed differently as expected, but in a good way. We found the exit of the snail shell, mum. During the first week after the surgery I struggled quite a lot, but then things improved. I am so grateful. I felt very safe and comfortable in… Continue reading Homey Happiness and Happy Home

my journey, surgery, vascular compression syndromes

Somewhere Over the Rainbow

Oops. I actually wanted to post this last night, but I was too exhausted from a short walk in the afternoon and the pain that I must have felt asleep and forgot it afterwards. The surgery didn't go as planned. The bomb was defused and the nut was cracked, but not like it was planned.… Continue reading Somewhere Over the Rainbow