The Odds are With me

More photos than text, but the pain and nausea decided to turn it up. Tomorrow, the nut will finally be cracked. Renal autotransplantation to treat Nutcracker Syndrome/LPHS - a condition that causes major flank pain (kidney stones like, but 24/7), nausea and various other symptoms-....of an abdomen that underwent several other major surgeries in the…

This Too Shall Pass.

Sorry for the long break. I deeply hope you are all doing as well as possible. In difficult times we grow together and new ways of support arise. I don't want to complain about my current state or involve any more people that might worry about me in these troubled times. We try to manage…

You Don’t Get Over It, You Get Through It

Things aren’t great. Flank pain. Nausea. Vomiting. Chest pain. Stomach pain. Severe dizziness. Fainting. Headaches… What a wonderful daily routine. In between, my body always knows how to entertain us even better****. I am currently living of opioids mixed with other yummy substances. I am laying down most of the day, but I still suffer from…

Serene Serendipity Flows With Serendipitous Serenity

It is getting very serious. Tomorrow is the big day. Cracking the nut and defuse the ticking time bomb inside me. 6.45am anaesthesia 8am-(at least!)4pm surgery: renal autotransplantation + aneurysm My mum will update you in the coming days.   We are getting very nervous and even calm little Vita is a bit overwhelmed with the…

Relief in a Free Castle?

First of all a massive thank you again to my old school MvLG in Koblenz that organised a charity run and collected more than 8,000 euros!  For the important bits please skip this. [I have added some notes to vascular compression syndromes, a page on sweet distractions and a page on tips for things and stuff. Soon I…